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WORLD FRAGILE X AWARENESS DAY: 22ND JULY

WORLD FRAGILE X AWARENESS DAY: 22ND JULY

Context:

Every year on 22nd July World Fragile X Awareness Day is observed.

About the Day:

  • On this day a number of landmarks and monuments are illuminated by various communities globally.
  • The Day celebrates the families who have been impacted by Fragile X and highlights the progress of cure finding research.
  • This day began with FRAXA Research Foundation joining hands with the various communities around the world to raise Fragile X awareness while making progress toward effective treatments and a cure.

About Fragile X:

  • Fragile X syndrome (FXS) is a genetic disease inherited from the parents to their children that causes developmental and intellectual disabilities.
  • Martin-Bell syndrome is another name of Fragile X Syndrome.
  • Among boys, the common hereditary mental disability disease is the FXS and 1 in 4,000 boys are affected.
  • Girls - 1 in every 8,000 being affected.
  • People experience developmental and learning problems while suffering from FXS.
  • This disease is a chronic condition.
  • Only some people who are suffering from FXS are able to live independently.

Fragile X Society-India:

  • It has been a support system for families impacted with the condition and also strives to create awareness about it.

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